Tag: HIV/AIDS

2013 Oscar Week: Acting Up: A Review of ‘How to Survive a Plague’

Guest post written by Diana Suber.

At the beginning of the AIDS epidemic, I was a child and only vaguely aware of the crisis as hundreds of people, mostly young gay men at that time, were dying from an unknown virus with no cure in sight. As a teen in the late eighties and early nineties, I do remember seeing the “Silence = Death” posters, t-shirts, and buttons with the iconic pink triangle, but I realize now that I did not know the full scope of what it all meant. So I was intrigued to watch the documentary How to Survive a Plague directed by journalist David France. Nominated this year for an Oscar in the Best Documentary Feature category, How to Survive a Plague chronicles the organization ACT UP (AIDS Coalition to Unleash Power) and its offshoot TAG (Treatment Action Group) from 1987 to 1996 and these organizations’ dedicated efforts to pressure the United States government and other authorities to prioritize HIV/AIDS research and treatment and to approach the epidemic as a healthcare emergency and not merely an isolated scourge among homosexual men.

“Silence = Death”
The principal setting of the film is Greenwich Village, New York, considered to be “ground zero” of the HIV/AIDS activist movement, where activists meet to organize, having been motivated to stop their friends, family members, lovers, and themselves from dying. The film is rich in archival footage of ACT UP and TAG meetings, protests against the federal and local government and various agencies such as the Food and Drug Administration (FDA) and the National Institutes of Health (NIH), and interviews with ACT UP and TAG activists at the forefront of the movement, including Peter Staley, Mark Harrington, and David Barr, just to name a few. Many of the activists featured in the film are white gay men; yet almost all of them attributed the long-term success of the movement to Dr. Iris Long, a straight woman and chemist, who gave the activists a crash course in drug testing protocols and working through the FDA/NIH bureaucracy. Other women activists featured in the film include Garance Franke-Ruta, Ann Northrop, and Dr. Ellen Cooper.

Director David France, who was a journalist at the time these events were unfolding, has said that his goal as a journalist and then as a filmmaker was to bear witness. Consequently, the film is a very detailed account of the power of grassroots activism. Not only did these activists–gay and straight, young and old, male and female, healthy and dying–use protest in the streets as a means of garnering attention to what activist and playwright Larry Kramer described as a plague that was killing hundreds of thousands, but they educated themselves and became experts on medical research, experts at navigating the bureaucracy of drug testing and drug approval protocols, experts on creating policies for the treatment of HIV/AIDS patients, experts at wrangling the media, and experts at placing pressure on key decision-makers in the FDA and NIH. The activists also partnered with and prodded drug companies to find and manufacture drugs to treat the disease. In fact, ACT UP and TAG’s open dialogue with scientists at pharmaceutical companies like Merck & Co. ultimately lead to the discovery of the combinations of protease inhibitors which have stopped HIV/AIDS from being a death sentence.

Although the movement was very successful, it was not without its drawbacks. Activists interviewed stated great disappointment when drugs for which they had advocated for and invested much time and resources did not ultimately work on the virus or its symptoms. Many activists did not survive to see the fruits of their labor realized. Indeed, a very poignant part of the film is when activists march to the White House, occupied at that time by President George H. W. Bush, and dump the ashes of their loved-ones on the lawn while yelling “Shame!” The documentary also explores some of the internal politics and strife that occurred within ACT-UP over the years as personalities clashed over the direction and focus of the movement. This strife led to a segment of ACT-UP leadership breaking off and forming TAG. Fortunately, neither organization allowed politics to derail their existence or the ultimate goal.

To his credit, France tempers the emotional frustration and urgency that permeates the film with moments of humor. One of my favorite scenes was footage of TAG activists placing a giant condom over the home of the late Senator Jesse Helms. And as I watched other archival footage of protesters with signs saying “Healthcare is a Right” scrolling across the screen, I was struck by how much the echoes of the past tend to reverberate in the present. The activists featured in this film — through their tireless work, their courage, and their deafening lack of silence — saved millions of lives. (The film states that more than 6 million lives have been saved since 1996 when the three-drug combination of protease inhibitors was identified as a viable treatment). But the fight is not over because there is still no cure for HIV/AIDS, the virus is still spreading worldwide especially among communities of color, and millions of people cannot afford and/or have no access to the life-prolonging drugs that are now available. And so the greatest take-away from How to Survive a Plague is the knowledge that silence is still not an option.

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Diana Suber is a movie-loving lawyer who lives in Atlanta. She writes movie reviews and other thoughts on film at her blog http://www.atlflickchick.com/.

2013 Oscar Week: ‘How to Survive a Plague’: When Aging Itself Becomes a Triumph

Guest post written by Ren Jender.

When the late Ed Koch, former mayor of New York City, saw How To Survive a Plague, journalist/director David France’s Oscar-nominated documentary about ACT UP (the AIDS Coalition To Unleash Power) New York, he wrote a review for his local neighborhood newspaper. The review was not just a rave but recommended the activists profiled receive Presidential Medals of Freedom! Koch didn’t mention those same people and many others spent much time (including a demonstration documented at the beginning of the film) protesting his administration’s criminally inadequate response to the AIDS crisis. Some of the people he praised in his review, including one of the founders of ACT UP, Larry Kramer, have called him a “murderer.”

Ed Koch image via Peter Staley, POZ Blogs

Koch is an extreme example of the mainstream’s counterintuitive embrace of this film in particular and ACT UP in general. Although we see video of hateful, reactionary Jesse Helms spewing venom toward the group from the floor of the U.S. Senate we would never know most mainstream (and even some of the gay press’) coverage of ACT UP actions, like the one disrupting a service at St. Patrick’s Cathedral (to protest the Catholic Church’s stance on safer sex) or the one shutting down the Food and Drug Administration (FDA) — archival footage from both actions is part of the film– was far from laudatory.

Still, France’s overview, fortified by his work on AIDS issues in the gay press during the crisis years, is impressive even to those of us who were there. Though I never attended ACT UP meetings I took part in my city’s ACT UP demonstrations (“demos”), did safer sex outreach with ACT UP members and went to the huge Kennebunkport demo, shown in the film, where George H.W. Bush was hung in effigy.

In the beginning of Plague intertitles and footage of people with AIDS close to the end of their lives set the scene, then archival video (including interviews) from ACT UP’s own media collective takes over most of the narrative. We see a loud, crowded meeting of the group where an action is planned and then the action itself, ending with activists being carted off one-by-one, screaming chants all the way to the police wagon. The film captures in this demonstration and the ones it shows later the camaraderie, exuberance and carnival-like atmosphere of ACT UP’s brand of activism, so necessary in an epidemic which devastated everyone in its path. 
AIDS decimated the population of gay and bisexual men during the period covered in Plague, and I’m not sure most young queers realize the effect that loss still has on our community. In the film, I noticed the t-shirts many of the activists wore (the film repeatedly captures on many bodies the unisex, activist uniform of: a t-shirt, motorcycle jacket, jeans and Doc Martins) were unmistakably designed by acclaimed artist Keith Haring (which he did as a fundraiser for ACT UP: he also makes a brief, wordless appearance in a demonstration in the film). The music in Plague is by cellist and vocalist Arthur Russell. Both men died of AIDS in the early nineties. They make up one small corner of the heart of queer culture lost during that time period. 
France expertly pieces together newsreel footage and present-day interviews, but for most of the story he culled hundreds of hours of ACT UP’s own electrifying videotape, some of which is also included in United in Anger another film released in 2012 about ACT UP New York. Audiences should see both, because at least as many riveting films could be made about the AIDS crisis as have been made about World War II. 
I’ve read some blog criticism that How To Survive a Plague is the rich, white, male version of United in Anger. In contrast to Plague,Anger spotlights many more HIV-positive women and women of color in ACT UP as well as men of color. It also makes clear that part of the schism (also documented in Plague) between ACT UP and the Treatment Action Group (which helped develop protocols for drug trials and accelerated drug approval by working with pharmaceutical companies) was because the latter was made up mostly of white, gay men. But since Plague is, in the end, about (spoiler alert) those who survived HIV, its focus on privileged, white, gay men, while not enviable, is inevitable.

How to Survive a Plague
Part of what galvanized these men into action was their outrage that even though they had been bond traders, movie producers, PR executives and Ivy League graduates, because they were gay (or bisexual) and because they were HIV-positive, the medical establishment and the government still treated them as if they were scum. The film documents in interviews with them as well as scientists their tireless work. We see, toward the beginning, a member of the drug buyer’s club rattle off a laundry list of medications before saying, “None of which work, by the way.” Toward the end, years later, we see how the Treatment Action Group helped bring to market the protease inhibitors and combination drug therapies that continue to extend the lives of many people with HIV (at least those with access to these drugs) today. 
Those drugs have not eradicated AIDS, but changed it from a virus that killed everyone it infected (we see one man quietly recite the ACT UP chant “ACT UP. Fight back. Fight AIDS,” to end the eulogy he gives at a fellow ACT UP member’s public funeral procession, then see his own obituary in the newspaper) to a disease that many people can now live with for decades. 
One of the most moving scenes in the film is close to the end when we see the survivors (many of whom we had seen only in archival footage up to this point) in a series of long, silent close-ups, as they are now, all of those twenty years etched onto their faces and the wrinkles, jowls, grey hair and aging itself becomes a triumph, as it rarely is on American movie screens. 
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Ren Jender is a writer/performer and producer whose work appears regularly on xoJane. She is currently soliciting work for a film anthology made up of short films by queer women writers. Follow her on Twitter at @RenJender.

Movie Preview: Life, Above All

 

I saw a preview for Life, Above All when I went to see Woody Allen’s latest misogyny-fest, Midnight in Paris. For the record, I mostly hated Midnight in Paris–and should review it as the sexist piece of crap it is–but I’m trying to find examples of positivity in the film industry these days. The only truly great thing about attending Midnight in Paris was discovering the upcoming Life, Above All (now playing in New York and L.A.) and the upcoming Take Shelter–holy crap that’s a freaky trailer.

Michael Shannon scares me.
Anyway, the official Web site synopsizes Life, Above All as follows:
Just after the death of her newly-born sister, Chanda, 12 years old, learns of a rumor that spreads like wildfire through her small, dust-ridden village near Johannesburg. It destroys her family and forces her mother to flee. Sensing that the gossip stems from prejudice and superstition, Chanda leaves home and school in search of her mother and the truth. Life, Above All is an emotional and universal drama about a young girl (stunningly performed by first-time-actress Khomotso Manyaka) who fights the fear and shame that have poisoned her community … Directed by South African filmmaker Oliver Schmitz (Mapantsula), it is based on the international award winning novel Chanda’s Secrets by Allan Stratton.

The trailer itself gets me teary-eyed. I watched it and realized how rarely mother-daughter relationships grace the screen in a way that doesn’t portray the mother as smothering and ridiculous and usually insane, and at the very least, just … shitty. (See: Black Swan, Carrie, Mommie Dearest, Phoebe in Wonderland, Gone Baby Gone, Fish Tank, and the upcoming Ansiedad. Add screen portrayals of the Mother-in-Law to the list, and it’s a disturbing clusterfuck of epic proportions.) 

While a few reviewers argue that Life, Above All ignores the government’s responsibilities in the HIV/AIDS crisis in South Africa (like the film failing to mention former president Thabo Mbeki’s sympathies with AIDS denialists in the 00’s), I’m excerpting from several positive reviews that focus on the interpersonal relationships in the film:

By Liz Braun:

Life, Above All is an historical snapshot of the AIDS crisis in Africa and an indictment of sorts of the government bungling that allowed the epidemic to overwhelm South Africa. The culprits (ignorance, poverty, big pharma, religious and political leaders, etc.) are not so much the focus; the point of this quiet, heartbreaking drama is all those children left to cope, especially the orphans.

By Nora Lee Mandel:

Rather than focusing on the usual corrective lessons on the transmission and treatment of HIV/AIDS, the family’s struggles play out within systems of traditional care and limited modern medical facilities that are strained to the breaking point. Chanda rails against the stoic comforts of religion and receives only discouraging advice at an overcrowded clinic. Her illiterate and exhausted mother falls prey to the greed of a charlatan doctor, a demon exorcism, and horrific neglect by her revengeful sister, who has not forgiven Lillian for her flouting of tribal marriage traditions for the sake of love.

By Manohla Dargis:

Chanda’s silence is unnerving, as is the absence of tears, and while her calm conveys a preternatural strength of character it also suggests a lifetime of pain. No child, you think, should have to pick out her baby sister’s coffin. But she does, taking in the horror of the funeral home and its metal table without flinching and then pushing forward, still dry eyed, still determined, taking on life with an appealing (and enviable) toughness and grace that make this difficult story not just bearable but also absorbing. As the weight of the world bears down on her slender frame, she becomes the movie’s moral compass and its authentic wonder: the child who is forced to be an adult yet remains childlike enough to feel real.

By Mary Corliss:

Two years ago, a drama with a seemingly forbidding subject — an illiterate teenage girl, pregnant with her father’s child and hellishly abused by her drug-addicted mother — won over critics, audiences and the members of the Academy of Motion Picture Arts and Sciences. The film was Precious. Now comes Life, Above All, which deals with the tragedy of AIDS in South Africa, as seen by a 12-year-old girl named Chanda. At the end of its world premiere at last year’s Cannes Film Festival, critics cheered like schoolkids, giving it a 10-minute standing ovation.

By Alison Willmore: 

… when its focus narrows onto Manyaka and her mother (Lerato Mvelase), their deep mutual affection and the terrifying sacrifices they’re ready to make because of it, the film sings, becoming a moving tribute to love holding fast against suffering. The ending, which offers a hint of relief, is unfiltered, frankly unbelievable melodrama, but something grimmer and more measured would be intolerable after everything that comes before.

In Memoriam: Elizabeth Taylor

Elizabeth Taylor 1932-2011

 

As you all likely know by now, Elizabeth Taylor died yesterday from congestive heart failure. There’s not much I can think to say about her that others haven’t said–and likely said better. Here are some highlights of her career as an actress, successful businesswoman, and HIV/AIDS activist.
  • Other awards Taylor won include a BAFTA, a GLAAD Media Vanguard Award, three Golden Globes–including the Cecil B. DeMille Award (one of only twelve women to win since the award’s inception in 1952), a SAG Lifetime Achievement Award, and many others–even a Razzie, for her role in 1994’s The Flintstones.
  • Her first film role was in the film There’s One Born Every Minute, when she was only ten years old, which led to her status as a child star. Adulthood brought her hit after hit, including Cleopatra in 1963, which was the most expensive movie to date with a budget of a million dollars. Her final feature film role was, unfortunately, in The Flintstones, though she appeared on television twice in 2001 and once on stage in 2007.
I must confess that the only film I’ve ever seen starring Elizabeth Taylor is Who’s Afraid of Virginia Woolf (not even Cleopatra, for shame!), which was amazing. In the past few decades, she’s been more active in business ventures and activism (and, of course, she remains known not only as a classic Hollywood actress, but also for her eight marriages, celebrity friendships, and pricey jewelry collection).
  • Not only did Taylor collect jewelry, but she also designed a successful collection. Her perfume line, which includes Passion, White Diamonds, and Black Pearls, earns roughly 200 million dollars a year. Many celebrities followed in her footsteps, creating signature fragrances as part of their branding initiatives.
  • Perhaps her most lasting legacy, other than her acting, is her HIV/AIDS activism. She raised over 100 million dollars to fight the disease, helped found the American Foundation for AIDS Research, and founded The Elizabeth Taylor HIV/AIDS Foundation.  

This isn’t, by any means, an exhaustive list of her accomplishments and influence. Check out her obit at the New York Times and the interactive media imbedded within, including a clip from Who’s Afraid of Virginia Woolf, and leave your links to Elizabeth Taylor related pieces in the comments.