Touching Friendship in ‘Marie’s Story’

‘Marie’s Story’ dramatizes the real-life biography of Marie Heurtin, a deafblind girl who was taken in by a convent in the late nineteenth century. It’s an intimate portrayal of an unusual relationship between two young women.


Written by Max Thornton.


The relationship between Christianity and disability is complex and many-sided, encompassing stigma and pity, aid and condescension, systematic exclusion and the creation of refuge spaces – and it’s not just an academic concern for scholars of religion. Societies that took shape under the influence of western Christianity still reflect and perpetuate Christian philosophical and ethical ideas, both in cultural attitudes and in policy and law. Disability is no exception. Levitical purity codes, New Testament healing narratives, and Augustinian theology of original sin all contribute to the mishmash of ableism that pervades twenty-first century US culture.

Disability scholars and cultural critics are doing some terrific work to examine and dismantle ableism. Some of my favorites include Andrew Pulrang at Disability Thinking (and his podcast, Disability.TV), the Disability Visibility Project, and the BBC’s Ouch podcast. You don’t have to spend long reading disability criticism to learn that one of the most hated forms of disability representation in popular culture is inspiration porn. The late, wonderful, deeply mourned Stella Young put it like this:

marie's-story-inspiration-porn
Ugggghhhhh

“[In inspiration porn] we’re objectifying disabled people for the benefit of nondisabled people. The purpose of these images is to inspire you, to motivate you, so that we can look at them and think, ‘Well, however bad my life is, it could be worse. I could be that person.’ But what if you are that person?”

Hollywood in particular loves inspiration porn, to that point that watching a movie about a disabled person is a source of dread for anyone who cares about disability studies. Will the disabled person be a precious angel, too good for this sinful earth? Will they exist primarily to teach the non-disabled protagonist a lesson? Will they be a bitter cripple who gradually triumphs over this dreadful tragedy? Will I throw up in my mouth?

I approached Marie’s Story with less trepidation than usual, though, both because it’s a small French film rather than slushy Oscar-bait, and because the titular Marie is played by a Deaf actress, the talented young Ariana Rivoire. For the most part, thankfully, my confidence was well-placed.

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Marie’s Story dramatizes the real-life biography of Marie Heurtin, a deafblind girl who was taken in by a convent in the late nineteenth century. The convent educated deaf children, but felt ill-equipped to teach a deafblind child who had no communication skills – until one very determined nun, Sister Marguerite, insisted on giving Marie a chance.

So far, so Miracle Worker, and in the early stages the film certainly hits a lot of beats familiar from popular narratives of Helen Keller’s life: the terrible fights with the strong-willed mentor, the transformation from wildling to neatly-coiffed well-mannered young woman, the come-to-Jesus moment of language comprehension. What’s distinctive about Marie’s Story is its convent setting and the normalization of the deaf environment (how many movies have you seen that pass the Bechdel Test in sign language as well as spoken words?).

Wisely, given popular Christianity’s reprehensible enthusiasm for the doubly nauseating Inspiration Porn With Added Jesus, Marie’s Story treads lightly around the religion aspect. No miracle healings or trite theodicies here – the most explicitly theological sequence in the film is a conversation around mortality, when Marie asks in frustration: “Who is God? Where is he? I can’t touch him.” The film as a whole functions as a panentheistic affirmation that she absolutely can touch God: despite Christianity’s emphasis on sight and sound as the primary senses for divine encounter, Marie’s alternative embodiment is the locus for divine encounter through touch and scent. From the opening sequence, in which Sister Marguerite climbs a tree and, looking for all the world like The Creation of Adam, extends a hand to a frightened Marie, this film stresses the power of bodily touch.

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The film doesn’t entirely escape certain inspiration porn pitfalls, primarily in voiceovers of Sister Marguerite’s diary entries where she gushes about how much she’s learned from Marie and describes Marie’s transformation in weird racialized and colonial terms of “savagery” and “imprisonment.” However, Marguerite’s own chronic illness keeps the relationship from being too one-sided. It’s in the final third that the film really shines, as Marie develops agency and character of her own, even tending to Marguerite just as the nun had previously cared for her. In perhaps the most moving sequence, Marie teaches her parents how to greet her in sign language, with Marguerite translating and facilitating but never speaking for or over Marie.

Ultimately, this is not a film about Saint Sister Marguerite and her noble civilizing mission to help a poor deafblind girl. Instead, it’s an intimate portrayal of an unusual relationship between two young women (watch for a scene where they lie in a meadow together like Bella and Edward), a quietly beautiful story of faith and female friendship.


Max Thornton blogs at Gay Christian Geek, tumbles as trans substantial, and tweets at @RainicornMax. He studies theology, disability, and gender, and gets really excited when they all come together.

Nudging Up: The Nice Comedy of Adam Hills

Comedy can be potent when it’s a transfiguration of rage at injustice, or of inner demons and self-loathing – but it can also just be nice. Adam Hills is a nice comedian. He’s not punching up or down: he’s not punching at all. At most, he’s nudging up.

Written by Max Thornton.

I suspect a lot of us are very, very sick of the constant attempts to defend bigotry in the guise of comedy. It just never stops. Every single week, it seems, some dude on Twitter or the stand-up circuit gets called out for a shocking instance of racism or sexism or homophobia or transphobia (or, if we’re really lucky, all of them at once), and then he and his minions dig their heels in because it was just a joke!

How many more times do we have to say that nothing is apolitical? How many more times can we explain the “punch up” principle? Sure, there are times when it’s more complicated than that and more nuance is called for, but it’s a good guiding principle, and it is not a difficult one to grasp.

And so, for our sanity, we adore our openly feminist comedians, people like Wanda Sykes or Margaret Cho or the Citizen Radio folks, as a necessary counterweight to the reactionary garbage that comprises much of comedy. These comics are performing a kind of alchemy, transforming their political anger into acts that entertain while speaking truth to power. Comedy can be potent when it’s a transfiguration of rage at injustice, or of inner demons and self-loathing – but it can also just be nice.

Adam Hills is a nice comedian. His stand-up set Adam Hills Stands Up Live, which aired on Britain’s Channel 4 in late 2012, isn’t about mockery or ridicule or attack (whether justified or not). He’s not punching up or down: he’s not punching at all. At most, he’s nudging up.

Look, how about we just don't talk about how it's possible for people outside the UK to watch this, okay?
Look, how about we just don’t talk about how it’s possible for people outside the UK to watch this, OK?

I’m not, of course, claiming it’s somehow apolitical, but this particular set doesn’t feature jokes about, say, gender relations or the government. On his TV show The Last Leg, he is sometimes more overtly political, calling out body-shaming, condemning rape threats, or having a spat with the Westboro Baptist Church, but the politics with which his stand-up is shot through is that of disability consciousness.

Adam Hills has a prosthetic foot. He has covered the summer Paralympics for television in his native Australia or in Britain for the last two competitions. In some ways Adam Hills Stands Up Live is a very gentle primer in the nuances of disability consciousness.

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Disability is a slippery category, one with fuzzy borders and a lot of contested terrain. Different disabilities have different, sometimes non-overlapping concerns. Conditions like mental illness, cognitive impairment, and Deafness are not necessarily included under the disability umbrella, whether through the preference of the people concerned or through their exclusion by others. The classic distinction between visible and invisible disabilities has been problematized by pointing out that many disabilities vary in visibility depending on the circumstances. Disability activists long ago distinguished disability as a social category from impairment as a bodily reality, analogous with the feminist distinction between gender and sex, but, like the sex/gender distinction, the disability/impairment distinction has recently come to be recognized as more complex than this simple dualism.

Hills points toward this slipperiness when he says, “I don’t consider myself disabled,” but elsewhere in the set refers to “other people with disabilities,” implying that he is part of the category. It’s a recognition that you don’t always have control over whether or not you are part of a social category. While he notes that “I am extremely lucky to have been born with a ‘disability’ that doesn’t dramatically affect my life,” Hills certainly doesn’t use that as a way to distance himself from other disabled people – on the contrary, he is very involved with disability and its slippery cousins.

Most strikingly, Hills frequently performs with a sign interpreter in order to welcome a Deaf audience to his shows. He incorporates the interpreter into his act, tells a number of jokes about the ins and outs of sign language, and interacts with the Deaf members of the audience.

[youtube_sc url=”https://www.youtube.com/watch?v=pfl7D4_joZU”]

Early in his career, Hills avoided mentioning his artificial foot in his act: “I wanted to prove myself as a comic before talking about this. I never wanted to lean on my leg.” Now, however, he is a public figure who talks and jokes about his disability without playing into ableist stereotypes of the inspirational supercrip or the bitter crip. His jokes about disability and sexuality draw attention to the odd ways in which people with disabilities are simultaneously desexed and hypersexualized, taking on the tipsy friends who wonder if he ever “uses it” in sexual situations as well as the woman who blurted out, “Can you still have sex?” (Answer: “Uh, yeah! What does your husband do? Does he take a run-up?”)

On top of all this, his James Brown bit is some of the purely nicest comedy I have ever seen. White male comedians, stop taking your inspiration from the Daniel Toshes of the world, and learn from Adam Hills instead.

Also, if you dress like Dr. Frank-N-Furter, I will fall in love with you.
Also, if you dress like Dr. Frank-N-Furter, I will fall in love with you.

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Max Thornton blogs at Gay Christian Geek, tumbles as trans substantial, and tweets at @RainicornMax.